Young Caregivers for Persons with Dementia

This panel will follow Much Too Young

With dementia hitting individuals at a younger age where they are in the prime of their career and family, financial and emotional strains are often amplified. However, the strains faced by these young families are often overlooked.

On this panel, we will speak specifically on the diagnosis of young onset dementia, and how this illness can affect the functioning of younger families. We will explore the resources and support available to young caregivers in Singapore, and how individuals can navigate through potential caregivers’ stress and guilt. We will also dialogue on the importance of ‘speaking out’ and ‘having a voice’ as a caregiver, and how we, as a society, can support their caregiving journey.

Though specific to young onset dementia, this panel is also well applicable to individuals interested to understand about young caregivers in general.

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Noorlinah Mohamed Headshot

Noorlinah Mohamed
Moderator

Noorlinah is an award-winning actress, a teaching artist, creator of public engagement projects and a caregiver to her mother who is diagnosed with dementia. She has delivered talks, participated in panels and workshops as well as created a performance called ‘Recalling Mother’ produced by Checkpoint Theatre to raise awareness on dementia and caregiving.
Since 1988, she has performed and taught in Singapore, Asia, Europe and the United States. Noorlinah is a recipient of the JCCI Cultural Award (2008) and the Women’s Weekly Women of our Time Award (2005) for her contributions to the arts. She obtained her PhD in Arts Education from the University of Warwick in 2013 and was Director of The O.P.E.N., a pre-festival of ideas and public engagement initiative of the Singapore International Festival of Arts (2014-2017).
Melissa Chan Headshot

Melissa Chan
Panelist

Melissa is the Head of Community and Outreach, Homage. She is also the Founder of Project We Forgot (PWF), a community for caregivers to persons with dementia that provides peer support, knowledge resources, and access to relevant services in the journey of caring. The founding of PWF was inspired by her journey in caring for her father, who had young-onset dementia.

Melissa also serves on the steering committee for the World Young Leaders in Dementia (WYLD) Network, where she helps drive the development of innovative dementia solutions across disciplines and borders. Her professional experiences span social innovation, community growth, and building brand strategies for the finance, hospitality, travel and technology sectors.

Robing Ng Headshot

Robing Ng
Panelist

Robing has been caring for his mother, Sally, who was diagnosed of dementia at the age of 62. In her early years, Sally was still manageable and could perform her ADLs (activities for daily living). But since 2016, her condition started deteriorating. Upon further assessment, Sally was diagnosed of frontal temporal lobe dementia (FTD), a rare form of dementia. She was recommended to be institutionalised in a nursing home to ensure 24/7 professional supervision.

As a caregiver, Robing experiences stress and mental exhaustion. Prior to Sally being institutionalised, he was constantly worried about her well-being at home or at the daycare centre. As well, his role as a caregiver affected his relationship with his ex-girlfriend. Still, he wants to be there for his mother, and will not give up on her. Robing visits his mother on a daily basis.

Stephen Chan Headshot

Stephen Chan
Panelist

Steven is the Head of the Alzheimer’s Disease Association (ADA) Caregiver Support Centre. He was previously the Centre Manager of New Horizon Centre (Tampines) for more than 10 years.  His work experience in the eldercare sector includes providing direct care as an Occupational Therapist, supervising and mentoring staff, and overseeing operations at the day-care centre. As an associate consultant and trainer for the ADA Resource and Training Centre, he has provided consultation and training to family caregivers, professional caregivers, as well as eldercare services providing care to persons with dementia.

Stephen has been involved as a member of the Ministry of Health Dementia Care Taskforce, as well as, the Agency for Integrated Care work-group, to develop standards on Centre-based Community facilities.

He holds a Masters of Gerontology from UniSIM, Singapore, and a Bachelor of Health Science in Occupational Therapy from the University of Sydney, Australia.  He has attained the WSQ Advanced Certificate in Training and Assessment (ACTA). Stephen is also appointed as a member of the National Transplant Ethics Panel of Lay Persons, which serves on Transplant Ethics Committees to ensure that living organ donations in Singapore are altruistic and ethical.

BHSc Occupational Therapy, M. Gerontology 

Linda Lim Headshot

Linda Lim
Panelist

Linda is an Advanced Practice Nurse (APN) with the National Neuroscience Institute (NNI) and the first APN in dementia service. With 22 working years as a nurse, her passion and love for patients and support for caregivers is still going strong. Since 2014, Linda and her team of nurses and psychologists have been active in a wide range of dementia related work, be it at the NNI or in the community. Linda is a seasoned speaker in the community, organising public memory screenings to create awareness for dementia and collaborating with other organisations to create job opportunities especially for the Young Onset Group.

Her work interest covers the Young Onset Group and children/teens. The Exclusive Support Group, led by Linda, is catered to children/teens in which they are encouraged to express their thoughts, emotions and struggles in a safe psychological environment. Closed door private counselling sessions with children/teens are also conducted.

In order to allow children/teens to have a clearer understanding of the disease, the first ever interactive book on Young Onset Dementia, “The Tangle Brain”, was produced with these three main themes:

a. Brain fun facts
b. Normal Brain versus Dementia disease Brain
c. Emotional Regulation

Master of Nursing (MN)

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